'Tourette's no longer defines me' says Bedford singer Grace Cope
The song was described by the charity's chief executive Emma McNally as a "heartfelt plea for understanding and acceptance" from the Tourette's community.
Tourettes Action
According to Tourettes Action, the condition affects one in 100 school-aged children and more than 300,000 people in the UK.
"Meeting people with Tourette's, being together in that space, it was so nice," says Grace.
"It's like taking a big deep breath and letting it all go when you're with other people with the condition."
During the recording, Grace met veteran music producer Chris Kimsey.
Over six decades, he has worked with some of the music industry's biggest names, including Marillion, Killing Joke, INXS, Jimmy Cliff and Peter Frampton, as well as the Stones, Led Zeppelin and Duran Duran.
Grace Cope
After hearing Grace's own music, he vowed to help her.
"Immediately, I went 'Oh my God, this woman's got so much talent,'" he says, recalling their meeting.
"Not only does she have a beautiful voice but her lyrics were very good, her sense of melody was excellent but, above that, the production of what she did - her use of reverb and balance and instruments - was quite incredible."
Chris Kimsey
Kimsey is now mentoring Grace as she writes and records her own music.
"What I can do is I can help introduce her to some other musicians; add an instrument or a string arrangement or a bass guitar," he says.
"She's got a very special talent and she needs help... it's a very exciting cause to be on board with."
Chris Kimsey
Grace released her first single Dead or Alive in March and it has since been streamed in more than 50 countries.
She's also been playing at open-mic nights across Bedford, attempting to conquer her fear of performing in public.
She is writing and recording new music and plans to release an EP in the coming months.
Grace says her dream is to tour, performing her music to live audiences and continuing to raise awareness about the condition she says no longer defines her.
"I always saw Tourette's as me; like I was just Tourette's, and that's all I was," she says.
"I don't feel like that any more. I can now say I'm a singer-songwriter. I produce my own music and I can put it out to the world."
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